I need help urgently to get services via HSE at Chamber House in Tallaght for my son Alex who is 13 in July. I was advised to send him to a normal school for social interaction for 4 years and assured by Cheeverstown in Templelogue that they would continue with all his services till he was up and in HSE programme once he transferred to special school. He got assessment in February 2014 confirming autism to go with his GDD, fits, Russell Silver et al. I got a letter in 2014 saying he was going on list as he was changed to special school, another 2015 saying he was going on list but it is now 2016 and my son has had no physio, OT, speech or any other type of therapy since 2014.
My almost 13 year old son is the size of a 4 year old with the mind of a 2 year old with poor mobility, poor speech and is still in nappies. What are you so called ” leaders” going to do about getting these services up and running. 2 years of no support is disgusting. If I had money I would pay for it. I have rang and got no reply. I worked all my life and paid taxes. Now when I need the services there are none. YOU HAVE TO BE RICH TO BE DISABLED IN IRELAND. SHAME SHAME SHAME ON ALL YOU SO CALLED LEADERS. YOU NEED TO ACT NOW NOT WAIT FOR A COMMISSION TO AGREE THAT EARLY INTERVENTION SAVES A LOT OF MONEY, TIME AND QUALITY OF LIFE. FOR GODS SAKE USE YOUR BRAINS NOW. WE PARENTS OF DISABLED CHILDREN DO IT EVERYDAY!!!!!!!!
Can you tell me now what you can do to help me and all other carers. We don’t even get the winter fuel allowance. Carers allowance is the one payment not to get it. Yet disabled children with poor mobility are the very ones who do need it, If our children got help when needed maybe they would have a better quality of life which in turn would make life a little better for their families too.
Would any one of you people like to come and look after my son for a month and then tell me the services I am NOT getting is the correct care for my Alex? He never sleeps for more than two hours at a time and is bottle fed at night so don’t worry about insomnia you wont get much of a change to try sleep anyway!!!!
I await your reply.
Does That Seem Fair To You?